I haven’t done a AI post for a while (and if you’re new to this blog you might want to catch up on some previous posts here). Which is not to say that I’m traveling swimmingly with my particular version of the disease. Nope, it’s up and down.
via pinterest.com
I’m still learning what flares things up. To be honest the biggest, lingering issue is inflammation. Which is no surprise. AI is all about inflammation. Healing AI, as well as treating it, is about reducing inflammation. Reducing flare-ups. And then de-exciting them smartly when they do happen. Which they will. I find this management process so frustrating. I flare up – which is to say I get inflammed – 2-3 days every week. It drives me mental.
my right side goes puffy, and my face and both feet. You’ll see photos of me where one day I look one size, the next a good size or two bigger. I can’t wear shoes.
my lips burn (the other day they swelled so much they split) and strangely, the skin of my stomach does, too.
I get brain fog. And can’t face talking to people.
I get super sensitive – to noise, light, EMFs, smells. I can’t cope with perfume or the smell of detergent. Even thoughts hurt.
and my digestion stops. In it’s tracks.
Below I’ll update with what I’m doing now to reduce the swell. (And remember: if you don’t have AI, the info on inflammation is key to good health in everyone!!!) I also thought it would be good to share this article by Dr Mark Hyman on ways to treat inflammation. It’s a good backgrounder on the inflam/AI link:
- Inflammation is connected to almost every known chronic disease: from heart disease to cancer, diabetes to obesity, autism to dementia and even depression…as well as AI.
- Autoimmune diseases now affect 24 million people and includes rheumatoid arthritis, lupus, multiple sclerosis, thyroid disease, inflammatory bowel disease, and more.
- Autoimmunity occurs when your immune system gets confused and your own tissues get caught in friendly cross-fire. Your body is fighting something — an infection, a toxin, an allergen, a food or the stress response — and somehow it redirects its hostile attack on your joints, your brain, your thyroid, your gut, your skin or sometimes your whole body.
- If you want to cool off inflammation in the body, you must find the source of the problem. [Often the toxin or allergen is gluten...which is why so many of us need to cut it out.]
- Interestingly, autoimmune disorders occur almost exclusively in developed countries. People in poor nations without modern amenities like running water, flushing toilets, washing machines and sterile backyards don’t get these diseases. [Interesting, hey!
Dr Hyman outlines some tricks for dealing with AI-related inflammation, including: checking for hidden infections — yeast, viruses, bacteria, lyme, et and allergens. And advises fixing your gut. The gut is the juncture where the allergens and toxins cross into our system. Strong gut = less invaders!
What do I do to keep the inflame at bay?
* I eat anti-inflammatory foods wherever I can. I dose up. Sometimes I make a big soup full of green vegetables. And eat with yoghurt.
* I eat yoghurt
* I take a rehmania and licorice tonic
* I take a high-grade fish oil (this is VERY key). I use UltraClean by BioCeuticals. Expensive, but the best.
* I make sure I sleep 8 hours. When I get less, I swell like a coke addict puffer fish.
* I got tested for heavy metal toxicity and found I have high mercury levels…a big issue for AI sufferers. I’m now treating this by chelating…with chlorella (1/2 a teaspoon every day) and lots of coriander. This has been an ‘interesting’ experience. I’m certainly detoxing something out…(vomiting etc). I’ll report back in a few months to let you know if it makes a difference.
* I turn off my internet and all power points in my room at night. And turn off my mobile. EMFs make a noticable difference to me.
Perhaps the most important thing I do now… I accept what goes on. When you’re an AI type, you become MORE AND MORE sensitive. It’s just the deal. It’s taken me ages to accept this..and for my friends and family to. No one explains this to us…we have to work this out. And move with it. Not inflame it by feeling it’s “wrong”.
But when I do get inflammed…
That, is if I’ve been traveling or not slept or drunk more than a glass of wine the night before. All these things see me swell within a few hours. Essentially, I a)focus on getting my gut happy, and b) de-excite. Calm down. Quieten down. It usually takes 1-2 days.
* I stay very quiet – I’ll cancel social stuff and read at home.
* I eat super clean food – veggies, no coffee, no alcohol
* I up my healthy gut aids. I’ve posted on these here. Right now I’m working with Miessence In-Liven probiotic superfood (a scoop in some yoghurt in the morning) and Carla Oates Inner Beauty Powder.
* I meditate
* I take a herbal laxative if need be (it’s not ideal, but it’s really not good to have any toxins “stuck” inside)
* I take extra tonic and fish oil Things get back to normal within 48 hours.
Hope this helps…feel free to pass on to other AI sufferers and to share your experiences and tips below…
I found this post so interesting.
Sarah, after quietening yourself and your lifestyle down you mention that you are back to normal in 48 hours. Would you agree, that alone is telling you something?
Maybe you are more suited to a quieter lifestyle permanently full stop. Maybe your job and all that it brings with it travel, deadlines, changes of routine, etc. etc. are not at all suited to your body. Yes they are obviously suited to your mind and who you are. But your body has other ideas what it wants. What do you think?
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Sarah have you tried kinesiology for AI..it’s one therapy bringing terrific health results for people with similar conditions..
Lara Goodger
Kinesiologist AIK ATMS Member
Natural Fx Health Solutions
Website: http://www.kinesiology.com.au/Maribyrnong.htm
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HI Sarah – Completely on the same page. As I sit here to write, my right side is swollen and my ankles look like I have just arrived home from a long haul flight or I am in Asia somewhere in the middle of summer!! I take the Ultraclean Bioceuticals oils and Vitamin C & large doses of D everyday which has changed my world for the better. Thanks for this post very relevant and very informative.
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Hi Sarah, so is leaky gut and digestive issues AI? I ask because I relate to every symptom that you wrote about. I have never understood why my face puffs and swells and why I get such bad brain fog? Thanks!
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June 27th, 2011 at 11:12 am
Mine were. You can get tests for celiac disease, colitis and Hashimotos, all of which I have, perhaps you may wish to investigate this further? Your GP is a good start, they can recommend blood tests & go from there. Good luck. xx
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June 27th, 2011 at 11:35 am
Thanks Mia x
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Although I don’t have an AI, I do have IBS and know what it’s like to deal with a long term condition. I *almost* have it under control, but if I get even a little stressed, I’ll be sick as a dog for a few days. All you can do it keep looking for things that help and stay positive, as well as not just taking pills that the dr prescribes (which did nothing for me, it’s all about lifestyle). I hope you keep finding what works for you!
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Comment #2
Re my above:
Maybe what I should have said is these things are not suited to your innate self. Therefore your body is reacting. Like me, you seem to be highly sensitive in all of your senses, feelings, emotions, observations etc. etc. When these
are put into intense situations, stress, distress etc . Our bodies react to our deeper inner self, being disturbed.
Hence the quietening and solitude realigns, calms and gives peace and we feel at one with ourselves again.
I just feel that being highly sensitive, highly observant is innate. We are wired a bit differently.
I know I have and love attention to detail. I can observe so much so quickly.
I hope I have explained myself clearly as to what I want to say to you. So many of your posts I have related to.
The one where you said edgey people make you edgey and nervey
The little things like in life that annoy you ( ie drivers, dripping taps etc) (Oh yes my list is a very long one!!)
The overwhelming all consuming feeling of incredible sadness you experienced that you posted.
I realise it is difficult to keep life too quiet and cannot be the case when you are younger, have to work, have a career.
But maybe my thoughts have shed some light as to what I am trying to say.
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Good work with this posting. Inflammation is the curse of brain tumor sufferers too. I found eating a dozen or so raw snow peas regularly is good for the cement-bowel syndrome. I experienced this particularly when having chemotherapy, but no more. Snowpeas are tasty and with no other side effects.
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Comment # 3
Please don’t mind my many comments.
It is just that it is all very thought provoking.
Meant to mention above that I have IBS, also stomach problem (burning) at night after being in bed for 1 hr. Have 80% organic diet. Have investigated my fructose, wheat, lactose.
So in all in all, it is an ongoing trial and error situation with foods etc. of how much how often. But one thing I do know for me, stress causes lots of iffy things to my body.
Last comment
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Hooray!! I love your AI posts.
I feel you 100% on the tingly lips and swelling (ugh, puffy face in photos and swollen belly so my jeans dont fit!) Also on the super sensitive sense of smell – people always joke that I am pregnant because even a tiny bit of off food in the fridge makes me gag! And I TOTALLY get that you have a few awesome days and feel like you are back on track… then crash.
I get so frustrated when people who DONT have AI tell me how I should be trying to manage it, or they dont believe you are really sick, because obviously when you actually want to go out you are feeling well! On bad days I stay home. Funny, that. You just need to know you are doing your best and sometimes even with your best, you have days that suck. So be it.
What most people actually dont realise is that by the time Hashimotos is diagnosed you have done a whole heap of damage to your thyroid. It will never function the same way again, or completely re-grow itself, and medication will not completely iradicate the symptoms. It becomes a case of management, not cure. It took me 5 years but I am fine with this. I used to think my immune system was trying to kill me. Now, I feel like Peter Parker after he was bit by the radioactive spider. My life has changed, not entirely for the better, but I have some super powers now. I am kind to myself and kinder to others. I have more clearly defined boundaries now. I am aware of my body and it’s limitations, and I treat it better. I am calmer, more patient, more generous, I love myself a hell of a lot more and I am genuinely happier. How many able bodied people can say that?
I am also a lot more accepting of my imperfections. Love it.
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thanks for post , its nice to know I am not alone in the world of chronic illness!
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Hi everyone,
Another great post. I have Hashimotto’s and in recent surgery for something else my surgeon even took a photo of an area of inflamation near my bowel – just to show me.
I’ve spent the last 2 years reading up, seeing specialists etc and through this journey – finally I have found a place that feels right. Finally I have found peace in accepting and letting go. Switching off from the fear of what it means and looking inside to what feels right.
I took so many vitamins for 12 months that it was a production every morning and evening. After a while I realised this production was driven by fear. That the ‘fear’ itself was doing me more damage than actually taking the vitamins.
So, I stripped right back.
Today, I meditate, twice daily. I try to surround myself with like-minded people as much as I can. I eat healthy food and I take vitamins – but only a few and out of love for my body not fear.
I’ve also made and continue to make lifestyle changes that go against the grain of this city we live in, but absolutely feed my soul.
In the end, our minds and our lifestyles are the biggest and most powerful place to find healing. If we get this right, we accept. If we get this right, we come from a place of love, not fear. We honour ourselves in our decisions.
It feels good!
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Hi Sarah,
Are you taking the Miessence In-Liven probiotic superfood and Carla Oates Inner Beauty Powder at the same time?
Do you take one in the morning and one at night, I am really interested in both.
On a side note what yoghurt do you recommend?
Thankyou muchly.
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Great stuff. Most of it is applicable to Chronic Fatigue Syndrome which I’ve partied with for the last ten years. Your positivity about your health companion is infectious!
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Thanks for this series. I’ve had a mystery illness since last December and I’m quite convinced that it’s AI-related (father died of MS, family history of Lupus and rheumatoid arthritis), although the docs have been unable to figure it out precisely. I’m going to get to the bottom of it, but more importantly I’m learning finding peace with the symptoms. You’re doing a great service to a wide range of people with your posts. Thanks.
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Our consciousness is so much more than we are.
The process of refinement brings with it so much more than we feel ready to deal with.
The body can be harsh but the shift in awareness brings hidden treasures.
That is the Gnosis .. the road less travelled ..
“Transmutation of lead into gold is presented as an analogy for personal transmutation, purification, and perfection.This approach is often termed ‘spiritual’, ‘esoteric’, or ‘internal’ alchemy.”
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Hi Sarah
You eat such a magnificently clean diet with fantastic supplements where do you get the high mercury toxicity from? Is it from eating fish or environmental?
I believe that everybody should be taking fish oil supplements at the very least these days for their anti-inflammatory value. When I take them I don’t particularly notice anything physically as I don’t really have any problems anymore, but my thinking is undoubtedly clearer.
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Thanks for this post. I appreciate the honesty and candor. I don’t have a diagnosed AI, or diagnosed celiac disease, but I do have severe reactions to gluten, which is why I have removed it from my diet for a decade. In the meantime, there seem to be other things that cause me inflammation, which I am still trying to figure out. I can go from having “abs of steal” to looking like I’m 7 months pregnant in a couple of hours! I also get the brain fog. And like you, don’t really feel like being social when this happens. I appreciate hearing about someone else dealing with similar problems. I helps to know I’m not alone. Thanks for the advice. I’m going to look into some of these supplements.
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October 3rd, 2011 at 10:03 pm
Hi, have you been tested for IBS or crohns disease? Crohn’s is an inflammatory bowel disease which when inflamed give pains (which can be very severe at times) and gives that pregnant feeling. It is part of the AI family. I was diagnosed ten years ago and just recently had test which have also shown up as having an allergy to gluten (but not diagnosed as coeliac).
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I’ve an AI too, sjogrens. If I’m inflamed I know it’s because my body is too acidic and I need to get back to being more alkaline. The quickest way I know to do that is to take vital greens powder 3-5 times a day and an epsom salts bath. I usually Ok within 24-48 hours.
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Hi Sarah.
You should read The Wellness and Prevention Paradigm (http://www.thewellnesspractice.com/products/wellness_and_prevention_paradigm.cfm)
It explains the why we are sick and how our lifestyles are the cause and solution beautifully and with enormous amounts of research to support it.
It should be mandatory to read in schools.
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Hi Gorgeous Sarah,
THANK you SO MUCH yet again for a generous and MEANINGFUL post. I know you are helping so many people out there and a lot of the advice and your own journey is very helpful for many of us quietly dealing with our own moments of: “I had enough…. – i just need to slow down – eat the right stuff, drink less and sleep more”. I’m currently juggling being a mum to a toddler, completing my Life & Business Coaching diploma and working with small business clients as a business & life coach from home (oh – and we are planning some major renos under our house to start in the next 6 months!). All this has taken its toll on my health and reading your blog has reminded me what I need to do more off (turn off the phone, cancel social and work engagements, read nice stuff and sleep more and eat better). Appropos eating better – I know that both my husband and I have a mild-to-medium dairy intollerance (when we are run down it REALLY flares up for both of us). so, inspired by your web post – I’ve just cooked a few AWESOME, dairy free dishes – from a cookbook by a UK mathematician/TV presenter Carol Vorderman – check her 2 awesome cookbooks (+ motivational relaxation CDs)out: “Eat Yourself Clever” (it’s not as corny as it sounds) and “Eat to Beat Cellulite” (again – sounds dreadful but the recipes and her commentary are EXCELLENT). THe food is very ‘clean’ and fresh and tasty (lots of garlic, olive oil, beetroots, oranges, nuts, broccolli etc etc.
OK – enough of my rumblings – I’ve just finished cooking and it’s nice to sit down at a computer
Take care, beautiful girl, you bring a lot of joy and help to so many people. Thank you for sharing and for being you.
Ellie
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Way back in 1996, as a young man, my husband had AI related Crohn’s Disease
It was horrendous, seriously debilitating – we tried everything to improve his situation but hardly anything made any difference.
Then he “caught” Stage 4 Brain Lymphoma with additional sites in spine, ribs, femurs etc, in 2000 (apparently, at that time a Haematologist at Peter Mac Hosp. had noticed a connection between the two).
Anyway, he had chemo,radiotherapy and ops and what have you.
Then after all that, a Stem Cell Transplant was decided upon.
It was an autologous one.
Before you have a Stem Cell Transplant you undergo mega chemo to completely wipe out your immune system.
Crohn’s Disease cured!
An unexpected side-effect.
Normal functioning at about 85% capacity.
Stem Cell Transplants are probably a severely drastic measure for curing AI ailments but it is very interesting, don’t you think?
Kinda like hitting the re-set button.
(oh yeah – cancer cured too!!)
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Hi Sarah
I work at a University in a school of health and sports science. There is quite alot of positive research around the polyphenolic colour compound from tumeric called curcumin and its anti-inflammatory effects following high intensity exercise. Its poorly absorbed from tumeric but can be improved with the addition of piperine (from pepper). I don’t know the dose required for an anti-inflammatory response in humans (plus your teeth will go yellow from all the tumeric) but you may want to look into it.
Best wishes for good health
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June 29th, 2011 at 8:53 pm
I used to go to a nutritionist with a PhD in biochemistry and she told me that I should be taking tumeric every day (due to having polyps) because of its anti-cancerous properties. I know you can get it in tablet form so I am guessing that this would not make your teeth go yellow? I wonder how well it is absorbed as I am not sure if the tablets are pure tumeric or have piperine in them – I never really looked into it but guess I should think about it.
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Actually, turmeric has been long used in Ayurvedic medicine for its anti-inflammatory properties, and it is also touted by Dr. Weil for these same properties. I make lots of curries with it, and always add a little more than what is called for in the recipe. It really does seem to help with the inflammation. I also drink a lot of aloe juice because the helps heal the mucosal lining…. hope that helps!
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Are you aware – the Carl Oates Beauty Powder contains agave as a sweetener! Just an FYI in case you didn’t know!
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I know you love yoghurt but it seems to be a constant, like the recurrent swelling. Maybe it’s time to give it a break for a couple of months and see if it makes a difference? I can eat yoghurt only when I’m super well. But even then, if I eat if for a couple of days in a row its a trigger for my inflammation.
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Hi
I don’t have AI but do have AS and know exactly what you mean – have you read book by Carol Sinclair The low starch diet – intended for IBS(which I don’t have) but has helped me alot. Have to spend alot of time alone – helps.
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July 2nd, 2011 at 4:46 pm
Hi Sy
This is a great book and written by somebody from their own experience, I think she was a ground breaker here.
You probably know about the site http://www.kickas.org/ which has a wealth of information about AS and diet??
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July 5th, 2011 at 9:13 am
hi
Thanks – didn’t know about the site as stopped looking for info years ago because there wasn’t much around. Thanks again – actually very touched that someone knew what AS was – I don’t actually tell anyone because how could they understand?
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July 5th, 2011 at 9:00 pm
Sy when I was learning Bowen Therapy, one of the teachers had quite a few tales to tell about how people’s lives were transformed when they cut out the starch because it effected their systems so badly, so hope you have also had some relief. It’s a tough diet to do – probably on a par with gluten free!
hi sarah,
thank you for opening up the conversation about auto-immune diseases. i think it’s so important to raise the awareness in every way possible.
i’ve had rheumatoid arthritis for the past 13 yrs, first noticing the condition at 17 yrs.
it took me a long time to come to terms with the illness, because “arthritis” has traditionally been known as a condition that affects elderly people.
i am in a good place now and try to balance western medicines with some natural remedies. kiniesiology worked incredibly well for me. matt bourke in mona vale and his clinic are amazing.
it’s very reassuring to hear so many others have such similar symptoms. because of the western medicines i’m on, my phycial appearance isn’t dramatically different. so, when i am having a “bad day” it’s very hard for people to understand what you are going through because they can’t see a dramatic physical change.
my brain fog occurs at least for 1-2 weeks of every month and can be so emotionally difficult to deal with. i had stopped taking fish oil supplements, so will be keen to implement this back in and see if there’s some improvement.
i’d also be keen to know what yoghurt you feel works best for you? i am not supposed to eat dairy, gluten, sugars or fructose – and although very restrictive – try my best to do so.
thanks again, your website is a great resource for me.
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July 1st, 2011 at 2:20 pm
Hi Beth,
It’s great to read your comments on this. Being a Melbourne Kinesiologist I know as you do the benefits Kinesiology brings to such health conditions and how well it works in with more western medical strategies.
Don’t know Matt personally but will look out for him round kinesiology world
My heart goes out to alot of people that have written in to Sarah’s blog..I’d love the chance to help them all..and Sarah!
Great to hear you’re in a good place..
Cheers Lara
Lara Goodger
Kinesiologist AIK ATMS Member
Natural Fx Health Solutions
Website: http://www.kinesiology.com.au/Maribyrnong.htm
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My own AI is inflammatory bowel disease – Crohn’s Disease in my case. My flare-up symptoms are different but the end result is much the same. I have difficulty in thinking terribly clearly on bad days especially on those days when it hurts to even get out of a chair. I become even less of a social animal than I already am (does that even make sense?)
For now, things are going OK. I was put on a new and rather drastic drug regime several years ago that finally got things settled down and it is continuing to behave itself. But I can assure anyone who doesn’t have an active form of AI, your lifestyle is pretty woeful.
Sarah, you are an example to all we fellow sufferers.
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Hi Sarah,
I hope in your travels and enquiries you discover the True Light which can fill your being,eliminate any poisonous energy and transform you. IF you keep looking and being open, you Will find it. Moving to the BB area will allow you to find some practitioners up there, Regards,
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Hi Sarah, There is a method of healing which is not widely known in Australia but is brilliant for restoring the body’s natural health systems to a state of balance. There are thousands of case histories worldwide. If you would like to try a session,it will take approx 40 min and is free of charge,all it will cost you is some time. Private message to me if you are interested as confidentiality is fully respected, Regards
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July 18th, 2012 at 6:35 am
Can you please respond to me regarding your post. What is this method of healing you wrote of. I’d like to look into it and see if I can access it where I live in Canada. Thank you
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Wow – there’s so much useful info here. I’m coeliac so the gut thing is a real issue for me.
My sister wrote a blog post about the Yin and Yang of inflammation and specifically the foods that can help bring things back into balance – some of the above plus more – in case there’s something useful in there for someone? http://aliveandwell.co/blog/2011/02/10-of-the-best-inflammation-fighting-foods/
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That’s a great looking site Marj, I have joined up for the newsletter – it’s good to see that you have “reformed”
The best sites always come from people who have walked the journey as they have the passion. Looking forward to my newsletters.
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July 6th, 2011 at 2:40 pm
Great Jan!
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Hi Sarah,
“Thank you” so much for sharing your story. I have many AI issues (4 so far!) and have been through the mill of Dr’s & specialists for over 20 years now and I still dont have decent Dr who has any idea how to treat me (except for Oroxine for thyroid antibodies, euthyroid sick syndrome was Endo’s dx as have normal TSH).
I am hoping to find a Dr who practises functional medicine on the Gold Coast and would be so grateful if you or your readers could help me by recommending somebody they have had success with. I am too tired to keep running around to all of these main stream Dr’s who dont want to deal with me as I am “too complex”.
Watched you on Sunrise this morning. I understood what you meant about “taking care of your gut”
Thanks again for your very helpful site, you are helping a lot of people out here, love your work Sarah!
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Hi Sarah,
I’m new to your blog and felt the need to ask have explored what has been going on for you emotionally that may have contributed to all this inflammation. My awareness is that inflammation in the body is closely related to anger.
My own health jounrey through a ovarian cancer has certainly highlighted the emotional issue which if was not the casue, definately contributed to it. This is not always the case, sometimes illness just is and we never fully understand the why.
It’s just a suggestion and I would be more than happy to have a personal conversation with you . I am so passionate about this subject and this area and my niche modality which I am currently studying in can have very poweful healing in this area.
My website is http://www.ownyourownpwer.com.au, all my contact details are there should you be interested.
I’m thrilled to have found your blog and have a great day!! xoxo
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hi sarah, stoked to have found so many others with AI stuff i can relate to. I’m also living in byron and there are so many days that being in this beautiful area is one of the only things that makes things seem on the up, especially now, coming into spring.
i have rheumatoid arthriits, a 4 year old and a 5 month old. last night in the middle of the night i dropped the baby. my hands were so seized and weak she felt about 40 kilos rather than 10. luckily we were on the bed at the time and she was fine but i became so bojangled that this thing might last forever – it flared when the baby was just 5 weeks old but breastfeeding means that i cant take anything.
anyways, it’s been good to see your posts about AI and i’m in the process of trying some of the suggestions you’ve posted so hopefully things will improve.
I dont know if this website would be helpful for you with a thyroid problem but at least it’s interesting reading and an alternative to some of the nasty immune suppressant drugs typically offered. it’s called the roadback foundation. i hope this works for you!
my goal is to get better to get on that morning swim from the pass. race ya!
cheers, kath
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this is amazing…i swell too!!! and my right side too! All over now but right side dominant. have to go back and read comments.
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i am amazed right now….I guess I thought I was just weird all along. I was diagnosed celiac and AI hypothyroid 8 months ago. I have never spoken with anyone, read anything or nothing yet that really explained what I’ve been feeing. I’m so glad to know I’m not crazy. I really didn’t understand…..wow. thanks everyone
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A friend of my sent me the link to your blog and told me i should read it. I just read a little but it brought me to tears. I hate to see anyone go through this but it is good to know that i am not a lone! Have you heard of Juice Plus? Please check out my website and watch the videos. I started taking it about 2 weeks ago and noticed immediate results. I have had chronic inflammation for over a year and am very limited on what i can eat. My inflammation is gone and it has been years since i have felt this good. I know i have a long road to recovery but i am so thankful to have Juice Plus to help me a long the way.
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Once I keyed onto the auto immune diease, I have been listening much more closely to my gut & body as a whole. From reading Sarah and you people I know there no one magic fix, but I’m living a better healthier life. Thanks!
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Also, can realate to constipation. Have you tried a product like “natural calm” a magnesium supplement? I drink a glass every night (start low and dose up…max around 700 mg) and its done WONDERS to my regularity.
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[...] a whole section on autoimmue disease. how to heal autoimmune disease: an update | Sarah Wilson http://www.sarahwilson.com.au/2011/0…-inflammation/ Last edited by nuttmegs17; Today at 09:28 AM. Reply With Quote [...]
I can’t believe I found this blog! I am getting tested for Hashimoto’s on Monday – only due to my insistence on testing antibodies based on my own research. NHS doctors (here in UK) not great at suggesting further testing as my blood results for hypothyroid were all normal range, even T3 (had to push for that to be tested as not done routinely here). Reading people comments about brain fog really interesting – I used to think I was just subnormal or unmotivated rather than due to health problems. Thanks everyone for your comments…. My chronic IBS-D cleared up after 15 yrs when I eliminated wheat completely from diet. Still get flare ups when I overeat….. have been seeing nutritionist which has been wonderful – she has got me on some excellent supplements – including high quality fish oil, probiotics, organic colostrum (called Immuno-GG) and now an adrenal support. Starting to feel positive effects from these but need to get serious about cutting out sugar and alcohol and caffeine. Part of me is rebelling against real lifestyle change but I know it must be done for real results. Can anyone tell me, who has Hashimoto’s, who is NOT taking Levothyroxine? What happens if you don’t take it? Can it be managed without it?
Thanks everyone! Pema (UK)
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I have read so many interesting and educating stories on AI that there has never been a time that I have gone away thinking positively about it, but I had been a a bit of a cheat with you as I had not given anything back. So here goes. I have been a fitness fanatic for a long time, and worked long hours as a government bureaucrat and later in private business. During the late 90s I noticed a dramatic change in my body, I started to get fungal and white blots began to appear on my hands and at times on my face. How embarrassing. The blots on my face disappeared, but my hands particularly on the bony knuckles were tuning white. Yes, I was a white man turning whiter. Nobody knew the answer, but everybody knew what it was, Vitiligo, an AI disease. I tried so many things, creams and lotions. With much soul seeking I began to believe, “The answer was blowin’in the wind.” I realised I had come to the end of the road I was travelling and needed to go a different path. I took a totally different road and moved out of the city to a beautiful seaside town up North, changed my diet, meditate for an hour each day and sleep 8-9 hours a day, exercise is a swim, walk or bike ride. I also discovered I was alergic to gluten in a big way. In this whole process of seeking a cure for vitiligo, the change of diet, meditation and sleep and gentle exercise, being kind to myself, has seen the biggest change in the Vitiligo.
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January 15th, 2012 at 11:34 am
I need a good sub ed, first paragraph should read, I never went away not feeling positive.
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I have have been. Looking for soaps that won’t make my body feel like running way from my skin. Organic soaps give me an itch. Goat milk soap is ok for the body, but not for the hair. Does anyone have any ideas?
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Thanks for writing about this kind of stuff! I’m so sick of not feeling normal, and people telling me to ‘harden up’ (it’s quite a kiwi thing to say/attitude)
I’ve been sick ever since I can remember (leukaemia as a child) then just everything between then and now. It’s getting really tiring, being constantly ill and it never be my actual fault. You’re blog has some really great suggestions I’m going to put into play for my mysterious illness. You’re amazing! x
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Thanks for the read, I was diagnosed
with fructose malabsorption, lactose intolerant and having a slight gluten intoleran
a year ago. Balancing out these foods canbe difficult, I found it
Interesting to read the link between Gluten and AI. I’m in the
Middle of waiting too see a specialist as I swollen Lymph nodes.
trying to make yummy tasty food without using the ingredients
I cannot have is difficult.
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[...] via sarahwilson.com and Pinterest.com 1jQuery(document).load(function(){ [...]
[...] everything seems a chore. Sarah Wilson has written about inflammation and ways to deal with it here. Sarah is a wonderful source of information and support for me and many other Hashi’s [...]
Hey,
I get inflammation in my joints.
I deal with inflammation in a number of ways depending on the severity. If the inflammation is acute I do RICE (rest, ice, compression, elevate) just like a sports injury, even though there was no injury. But never stop moving completely because its much harder to start again once you stop.
Now I am vigilant preventer of inflammation. I avoid tomatoes, and acidic foods. I don’t eat dairy and avoid carbohydrates (except rice). I do regular exercise, moving all my joints in their full range of motion. Strength training, but never to the point of exhaustion.
Drink lots of water…
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I HAVE SUFFERED FROM AI ARTHRITIS BOUTS FOR OVER TWENTY YEARS AND HAVE DEVELOPED HASHIMOTOES DISEASE ALSO FOR WHICH I HAVE BEEN PRESCRIBED OROXIN BY MY DOCTOR.HOWEVER SOME MONTHS AGO I CAME ACROSS A PRODUCT CALLED VITAL 3 JOINT SOLUTION .SO FAR IT HAS BEEN WORKING FOR ME,THE BOUTS HAVE STOPPED AND INFLAMMATION IS GONE.IT SEEMS TO HAVE QUELLED MY IMMUNE SYSTEM? SO FAR IT HAS BEEN WORKING FOR OVER SIX MONTHS.YOURS IN TRUTH VERNON TREWEEKE
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It may be rough initially, but curbing excessive milk intake is the healthiest intervention you can provide for your child.
Although this remains untested in labs, the
effect of fish oil on my toddler made her constipation vanish when we discovered
at an in-store sampling that Nordic Naturals Strawberry Children’s DHA gels were a treat to her. Online message boards, Mom’s groups.
..I’ve even overheard it as a topic of discussion between parents at one of my son’s gym classes.
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